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LiveJournal for Long-Term Bell's Palsy Sufferers and Friends.

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Monday, May 18th, 2015

Posted by:4tripps.
Time:7:39 pm.
Name: Amy
Location: Key West
Do you currently have Bell's Palsy? No
How long have you had Bell's and what percent recovered are you? Got it a year ago almost fully recovered
How has Bell's Palsy affected you physically in the short - and long-term? It has only affected my right eye slightly and only I can really notice difference and slight crooked smile.
How has Bell's Palsy affected you emotionally? Makes me nervous when I start to get pain behind ear or my eye starts twitching like it is now.
How were you treated by family, friends, acquaintances, and strangers ? I was lucky that my condition only lasted a few weeks however it was discouraging and made me realize how people with a condition that lasts longer must feel and all the hardships with everyday tasks such as eating or drinking.

My question for the community is if anyone had it come back? I had mine happen almost a year ago and it was after a very stressful event. I felt the pain for a couple days before it happened behind my ears. I am starting to have that pain again and my eye is twitching and feels dry (on same side). Would you say it is coming back or this is just effects leftover?

Thank you for you help!
Amy
Comments: Add Your Own.

Thursday, April 17th, 2008

Subject:Life sentence
Posted by:werebittch.
Time:11:23 pm.
Name:  Werebittch
Location: Australia
Do you currently have Bell's Palsy? Yes
How long have you had Bell's and what percent recovered are you? 52 years - got it as a newborn
What treatment, if any, did you undergo/are undergoing? manual facial massage, muscle on 'good' side cut to weaken it (age 8), sling added to 'bad' side (age 13), weight on eyelid and stitched outer corner of eye(age 21)
How did treatment affect your condition? improved asthetics, less eye infections
How has Bell's Palsy affected you physically in the short- and long-term? speech slurred and some drooling when tired, drooping eyebrow and ear, dry eye, eye infections. Recently the 'bad' side has dropped and looks like it is melting.
How has Bell's Palsy affected you emotionally? growing up - hell. mid life - ignored it. now - scares me
How were you treated by family, friends, acquaintances, and strangers ? family and friends pretend they don't see it and wont discuss it. Acquaintances pretend they dont see it but are great at making up reasons for the look. Strangers - I work in customer service so it can sometimes be interesting how a stranger handles a crooked smile.

The look affects everyday life - there is no ignoring it as it is 'in your face' so to speak.
Comments: Read 1 orAdd Your Own.

Wednesday, January 16th, 2008

Subject:hello
Posted by:stripedpony.
Time:12:41 am.
Name: Stripedpony
Location: mississippi
Do you currently have Bell's Palsy? No
Did you experience any common "warning signs" before it set on? (such as numbness of mouth, earache, muscle spasms, etc.) yes
What treatment, if any, did you undergo/are undergoing? currently on Neurontin and lortab
How did treatment affect your condition? none yet
Did Bell's turn out to be a symptom of another condition? (serious neurological problems, lyme disease, virii, etc.)dont know yet





Hello to all. While I have not been diagnosed with Bells I have been diagnosed with trigeminal Neuralgia. I was hoping someone here might give me some insight on it or where to find insight.

thank you
Comments: Add Your Own.

Tuesday, May 29th, 2007

Subject:New!
Posted by:cherrybubbly.
Time:2:26 am.
Mood: good.
Name: Ashlie
Location: Central California
Do you currently have Bell's Palsy? Yes
Did you experience any common "warning signs" before it set on?  Yes.  My face goes into an incredible amount of throbbish-stabby pain on the right side from the side of my eye down to my jaw, then I have to pop back to the doctor and say "It's back."
How long have you had Bell's and what percent recovered are you? 9 years, off and on I'd say I've had to take Prednisone for it about 5 times though.
What treatment, if any, did you undergo/are undergoing? Prednisone and some therapy thing I do when I'm better.
How did treatment affect your condition? It gets better.
Did Bell's turn out to be a symptom of another condition? Doctor thinks it's stress-related.  Who knows.
How has Bell's Palsy affected you physically in the short- and long-term?  When it's better I still get shooting pains in parts of my face, and my eye twitches visibly.  When I relapse(?) back and have to take medication it's expensive and annoying.
How has Bell's Palsy affected you emotionally?  Irritable about it and people who don't understand it. Occasionally have to correct someone that I haven't had a Stroke.
How were you treated by family, friends, acquaintances, and strangers once your appearance changed? My family understands.  Friends don't seem to care either way, they're cool about the whole thing.  Strangers stare or do a double-take.  The salon lady has the worst time with it.  Hard to get the eyebrows even when one of them is lower than the other.  I've not gone back since.
Comments: Read 3 orAdd Your Own.

Sunday, April 8th, 2007

Subject:Hello, I'm new here :)
Posted by:xxkaishakuxx.
Time:12:04 am.
Name: Trixie
Location: Auckland, New Zealand
Do you currently have Bell's Palsy? Yes
Did you experience any common "warning signs" before it set on? I had a headache and I was incredibly tired the night before I woke up to an even worse headache and swollen face, etc.
How long have you had Bell's and what percent recovered are you? I first got it almost 3 years ago, I would say I'm about 75% recovered.
What treatment, if any, did you undergo/are undergoing? When I was first diagnosed, I took prednisone and some antivirals, plus painkillers. I don't take anything at the moment.
How did treatment affect your condition? I couldn't swallow my antivirals, so i had to chew them which I'm sure affected their effect on me.
Did Bell's turn out to be a symptom of another condition? Not as far as I know.
How has Bell's Palsy affected you physically in the short- and long-term? I can't smile, or lift my eyebrow. I can't stand looking at myself in the mirror or seeing photos of myself, I look really weird. Chewing is still weird, I use my tongue to push the food around my mouth. I get really bad cramp like pain, feels like my ear is exploding. 
How has Bell's Palsy affected you emotionally? I kinda became a recluse after I got it. I'm sure it's affecting my ability to get a job, and it's incredibly depressing.
How were you treated by family, friends, acquaintances, and strangers once your appearance changed? Weirdly. My family didn't really know how to take it, and they walked around on eggshells around me. They still do, a bit. Strangers look at me oddly, and I hate it. I know I'll never be able to get a job in retail or anything, because it looks so horrible. I used to pretend I'd just been to the dentist if anyone said anything, but these days I just don't answer.
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Wednesday, March 14th, 2007

Subject:Hi there.
Posted by:electrablue.
Time:1:03 am.
Mood: tired.
I've been a pretty crummy maintainer of this community. I started it as a place to open up to other people about Bell's palsy, but I'm not so good at opening up, and sometimes reading other peoples' stories makes me sadder about my own troubles. I guess I'm not so good at this, but I am glad that in my absence there have been new members and some really excellent conversation and help. I'm glad that people have come here and get answers, or at least a little comfort.

So I'm going to be a hypocrite and talk now and hope someone listens. My neurological troubles have increased tenfold in the past year - I got diagnosed with Multiple Sclerosis. Read more...Collapse )

I'm not making too terribly much sense here, but I just needed to get that out. I hope everyone here is well and I'm glad the community's still alive. You guys take care and thanks a lot.

-Ruth
Comments: Read 1 orAdd Your Own.

Friday, January 19th, 2007

Subject:First post to smile_interrupted - hiya!
Posted by:bellspalsy.
Time:7:57 am.
Name: Mike
Location: Seattle, Washington
Do you currently have Bell's Palsy? Yes
Did you experience any common "warning signs" before it set on? I had a headache and earache on that side for three days before it started in.
How long have you had Bell's and what percent recovered are you? It started seven days ago, and so far, it hasn't recovered a lot, but it feels like it's getting better
What treatment, if any, did you undergo/are undergoing? Prednisone and Famvir, as well as an antibiotic ointment for my eye.
How did treatment affect your condition? Hard to say, but I'm sure it's not making it worse :)
Did Bell's turn out to be a symptom of another condition? Possibly a sinus infection - I had some other odd nerve glitches in my hands and feet for the past month, and I definitely had swelling, so it may be related.
How has Bell's Palsy affected you physically in the short- and long-term? I'm wearing an eyepatch over my eye since it's not closing all the way and the ointment is making the vision blurry. Drinking is a bit odd, since I tend to dribble a bit.
How has Bell's Palsy affected you emotionally? Actually, not too bad - it looks like a mild case and I'll hopefully heal quickly, so I'm just keeping positive about that.
How were you treated by family, friends, acquaintances, and strangers once your appearance changed? Nobody's outwardly said anything, besides some pirate jokes. :)
Question for you all: Over the past few days, I've noticed that the muscles around the bottom of my jaw on the side with BP have been tender and sore - the current theory is that the muscles there are sore from overcompensating for the non-working BP-affected muscles. Anybody else experience this?
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Saturday, December 16th, 2006

Posted by:fujin06.
Time:11:43 pm.
I got bells palsy when I was 7 (when a coldsore showed up on my face...) It went away when I was 9...came back at 14.... and went away again (tho it wasnt REALLY gone, my face was still a bit lopsided) and now i have a new cold sore on my face) and my face is swollen... ;-; (sorry guys I'm trying desperately not to be emo here, but I felt like I had to tell someone... :/ )
and now Ive got ice on my face hoping the swelling will go down
Comments: Read 2 orAdd Your Own.

Monday, September 4th, 2006

Posted by:iwishihadariver.
Time:4:11 pm.
Hi, everyone--
Thanks for all of your help, advice, and support after my last post.
I've had Bell's Palsy for 15 days now, and I've noticed so much improvement over the past week. I am able to talk without feeling like I can't enunciate (unless I talk for long periods of time, like on the phone), eating is much easier, and I'm even able to drink from a straw again!
Today when I looked in the mirror I realized that I could almost-sort-of-half-smile again! It's not a full smile, for sure, but it's not nearly as lopsided as it was, and if I smile just a little bit it almost looks even on each side!
In addition, if I blink really quickly, only my left eye closes, but if I think about it and do it slowly, my eyelids move at nearly the same rate, and the lid on the BP side seems to close 99% of the way! I think I might be nearly ready for my contacts again!
I'm really anxious to be completely done with this, and I'm so excited that my recovery seems to be coming rather quickly and painlessly.
So my question is this, for those of you that have recovered--once you started noticing things like this, how long was it until you recovered completely?
Thanks again,
Amber
Comments: Read 2 orAdd Your Own.

Wednesday, August 23rd, 2006

Subject:new member
Posted by:iwishihadariver.
Time:1:44 pm.
Name: Amber
Location: Cleveland, Ohio
Do you currently have Bell's Palsy? Yes
Did you experience any common "warning signs" before it set on? My eye started twitching and my tongue felt like it had a thin wax coating 2 days before.
How long have you had Bell's and what percent recovered are you? I got it 3 days ago, so nothing has improved yet.
What treatment, if any, did you undergo/are undergoing? I am taking 60mg of Prednisone every day for 6 days.
How did treatment affect your condition? I'm not sure yet.
Did Bell's turn out to be a symptom of another condition? Probably Hepatitis A, but I won't know for sure until I get lab results back on Friday.
How has Bell's Palsy affected you physically in the short- and long-term? I can't smile or blink; eating and drinking are very difficult, and my eye tires very easily.
How has Bell's Palsy affected you emotionally? I feel like a freak. I am beginning of senior year of college in 5 days, and I am dreading going back to school. I don't want anyone to see me like this.
How were you treated by family, friends, acquaintances, and strangers once your appearance changed? I've been trying to avoid public spaces, but of course that is impossible. My mom cried when she saw me smile, but no one has made me feel bad about it.

Question for you all: Since I started taking the Prednisone, I've noticed that water and other food and drinks with light flavors taste metallic, like a penny or like blood. Has anyone else experienced this? When will it go away?

Any advice on dealing with starting school like this? I'm really worried that I won't be able to keep up with my schoolwork since my eye tires so quickly, and I'm scared to even show up in class looking like this.

Most of all, though, I miss SMILING!
Comments: Read 8 orAdd Your Own.

Tuesday, June 6th, 2006

Subject:New Member
Posted by:empressstephie.
Time:7:50 pm.
Name: Stephanie
Do you currently have Bell's Palsy?

Yes
Did you experience any common "warning signs" before it set on?

I had a horrible headache for 3 days, well I thought it was a headache. Turns out it was pain in the cranial nerve.
How long have you had Bell's and what percent recovered are you? It's been about 2 weeks. No real recovery yet.
What treatment, if any, did you undergo/are undergoing? Acyclovir, steriods (annoyingly I wasn't given them immediately). The original doctor just handed me a sheet saying the name of the disease and the anti-virals. I'm also taking sublingual B-12 and other vitamins. I'm doing phsyical therapy, acupuncture, and skull realignment with a chriopractor.
How did treatment affect your condition? I think it's too soon to tell if any of it is working.
Did Bell's turn out to be a symptom of another condition? No. I've never even had a cold sore.
How has Bell's Palsy affected you physically in the short- and long-term? It's making me hate my life, which is sad because I've always been content with my life.
How has Bell's Palsy affected you emotionally? Yea.
How were you treated by family, friends, acquaintances, and strangers once your appearance changed? Although I'm getting really sick of people telling me its going to be ok etc etc people in general have been pretty nice about, my family especially.


I have a question. On a lot of sites they talk about recovery percentages. It seems like most people get up to 99% back... but what does that really mean? Like if you're 99% what's still not working for you?
Comments: Read 5 orAdd Your Own.

Sunday, November 6th, 2005

Subject:Hello so glad to be part of this community
Posted by:alwaysmarta.
Time:6:57 pm.
Mood: curious.
Name: Marta

Location: California

Do you currently have Bell's Palsy? I've had bells palsy three times..01/01, 12/03 and 09/05

Did you experience any common "warning signs" before it set on? numbness, and pain on right side of face.

How long have you had Bell's and what percent recovered are you? When i recover movement i'm left with some effects that i don't get back and i'm pretty sure it's pernment but i only feel people cannot tell..

What treatment, if any, did you undergo/are undergoing?Prednisone & acyclovir the first time they also gave me vol

How did treatment affect your condition? It help but i'm left with some numbness and droopiness.

Did Bell's turn out to be a symptom of another condition? No not that I know of.

How has Bell's Palsy affected you physically in the short- and long-term? I feel the distortion. When i don't have it but everybody and myself see it when i have it. But the fact that nobody feels what i'm feeling my face that is.

How has Bell's Palsy affected you emotionally?The first time i was new to this condition and never heard of this at all...and the first time it was more like open eye and numbness of the ride side of face...now the second time was scary i didn't get no movement for a long time i thought i would stay like that pernmently and the doctor informed me that the more i got the more chance of pernment consequences =(

How were you treated by family, friends, acquaintances, and strangers once your appearance changed? Pretty much family and friends kept telling me not to stress so much. They felt bad for me. First time i got it was working 12 to 14 hours a day. Second time a dear friend pass away and third time. Just by getting depress.
Comments: Add Your Own.

Saturday, October 15th, 2005

Subject:Introducing myself
Posted by:ohanamd.
Time:12:33 pm.
Name: Michael (ohanamd)

Location: Santa Fe, NM

Do you currently have Bell's Palsy? No. Now I have trigeminal neuralgia on the same side that I had Bell’s palsy. It’s been about 12 years since I had BP.

Did you experience any common "warning signs" before it set on? I don’t think so. I was surprised when it came on.

How long have you had Bell's and what percent recovered are you? Fully recovered from my 6-week bout with BP. However, docs have suggested that my current trigeminal neuralgia may be related to my past experience of BP.

What treatment, if any, did you undergo/are undergoing? For the BP I took Prednesone and had acupuncture.

How did treatment affect your condition? Symptoms disappeared after 6 weeks.

Did Bell's turn out to be a symptom of another condition? As I said, 12 years later I’ve developed trigeminal neuralgia. Does anyone know anything about their being related?

How were you treated by family, friends, acquaintances, and strangers once your appearance changed? Compassionately, with concern. I knew a lot of people who had had it or who had previously known someone else who had.
Comments: Read 1 orAdd Your Own.

Saturday, August 6th, 2005

Posted by:2morrows.
Time:9:12 pm.
Lyme disease is the most commonly diagnosed vector-borne disease in the United States, with over 99,000 cases reported to the Centers for Disease Control and Prevention from 1982 to 1996. During that time, the incidence of reported cases increased by at least 32-fold (LYMErix, 1998).

It is also currently the fastest growing infectious disease in the world (Vanderhoof-Forschner, 1997): between 1991 and 2000, the incidence of Lyme Disease in the United States nearly doubled and the 17,730 cases reported for the year 2000 was higher than any other previous year (Schwan, 2003). Lyme disease even surpasses AIDS as one of our nation’s fastest growing epidemics (Lang, 1997).

...to learn more about tick-borne diseases and to discuss how they affect the economy, environment, and individuals: join tickedoff
Comments: Read 1 orAdd Your Own.

Tuesday, July 12th, 2005

Subject:Symptoms Question
Posted by:angels_breath.
Time:4:26 pm.
Hey gang! I know we can be a pretty quiet group, but I have a question that'll maybe liven the place up a bit.

Lately, my symptoms have been pretty forthcoming. Pain, numbness, some very mild amount of delay in muscles, nothing too troublesome. But also, I've been having a LOT of headaches and migraines.

This morning, I woke up. And I had triple/quadruple vision. So I shut my eyes and opened them again, in case I was dreaming the wierd stuff. However, my daughter jumping on the bed next to me wasen't a dream, nor was the wacky vision, as I affirmed when I opened my eyes a second time. Yup, still funky. So I shut them again. Opened them... yup, still wierd. I try to look around, and hey, more fun stuff, my vision, wierd already as it was, was now jumping all over the place. Ooookay. So this time I shut them again and waited a little bit. Opened them again, still wierd, but hey, only double! So I just tried to focus carefully, and slowly, it started to clear up and all was well and returned to 'normal'.

So... anyone else have this symptom of BP's before? Maybe it's not a symptom? Something else? I dunno, so I thought I would ask. Went to the eye doctors already, my eyes are fine and my nerve is fine, from what he could see. So.. I have a call into my GP. In the meantime, I thought I would see what you fine people have to say!
Comments: Read 5 orAdd Your Own.

Monday, May 16th, 2005

Posted by:oblover.
Time:4:43 pm.
Mood: contemplative.
Hello Everyone! There was a really interesting article in People Magazine yesterday about an actor that has BP. It said he had a sinus infection before he got it. I realized, I had one before, too! I had never heard of that. Anyone else?

Stay Cool.

-Bridget
Comments: Read 5 orAdd Your Own.

Tuesday, April 26th, 2005

Subject:pains around the eye
Posted by:muisje_77.
Time:10:13 pm.
Got BP almost 3 years ago, things are going pretty good exept for one thing.
Been having these pains around my left eye (BP side) almost daily now. Kinda feels like cramps, like someone's sticking needles in the eye. Do more of you have this 'problem', if so, what should I do? Tried to massage the area but that doesn't help :-(
Comments: Read 2 orAdd Your Own.

Monday, April 18th, 2005

Posted by:pretty_sparkles.
Time:8:26 pm.
I've had bell's palsy for over two years now..it's been bothering me lately...i'm thinking about accupuncture..has anyone tried and had any success with that?? is there a possibilty that it could make it worse?
Comments: Read 7 orAdd Your Own.

Sunday, January 23rd, 2005

Posted by:pretty_sparkles.
Time:12:59 am.
well..it's now my birthday..also two years since i've gotten BP...god i hate it..i wish they'd hurry up and figure out how to fix my face...haha..it pisses me off to see people get botox..if they dont want their face to move they should have BP..i dont get it...people are so vaine..
Comments: Read 4 orAdd Your Own.

Wednesday, January 12th, 2005

Subject:Hi, I'm new
Posted by:fujin06.
Time:2:50 pm.

Name: Kelsey
Location: Tampa, Florida
Do you currently have Bell's Palsy?Yes
Did you experience any common "warning signs" before it set on? (such as numbness of mouth, earache, muscle spasms, etc.) no, if i remember correctly it happened overnight, though it was 10 years ago.. o-o
How long have you had Bell's and what percent recovered are you? I was 7 when I got it...., I'm 17 now, And it "came back" when I was 15, and again today... My face has never been the same
What treatment, if any, did you undergo/are undergoing? Steroids, they put me on them, then when it "goes away"(though it's not really gone, my face is still messed up..) they take me off them..
How did treatment affect your condition?it worked for a little bit
Did Bell's turn out to be a symptom of another condition? (serious neurological problems, lyme disease, virii, etc.) no, thank god...
How has Bell's Palsy affected you physically in the short- and long-term? Well, I have horrible eyesight in my right eye, I drool, can't smile right.. thats all i can think off right now
How has Bell's Palsy affected you emotionally?Well, I was 7 when I got it, I don't think I really knew what was going on, but all i knew was I had to wear an eyepatch, etc, and little kids(sometimes unkowingly...) (as well as teenagers, and even some adults can be cruel) so I've never had a good self esteem, and I probably never will... I've tried to learn to ignore other peoples comments, but it's hard... I'm sure you all know about it..
How were you treated by family, friends, acquaintances, and strangers once your appearance changed? Well my family pretended like it wasn't even there, my friends asked me what was wrong with my face (in a nicer way than most people would ask), and I'd tell them, strangers.. well I got tons of insults etc, sometimes I got pity.. You guys know how it all goes...

Comments: Read 6 orAdd Your Own.

LiveJournal for Long-Term Bell's Palsy Sufferers and Friends.

View:User Info.
View:Friends.
View:Calendar.
View:Website (Bell's Palsy Info @ Neurology Channel).
View:Memories.
You're looking at the latest 20 entries. Missed some entries? Then simply jump back 20 entries.